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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Hypoparathyroidism Association, Inc.



Address

PO Box 2258
Idaho Falls, ID 83403

Phone

2085243857

Fax

2055243857

800 Number

8662130394

Email Address

jsanders@hypopara.org

Description

The Hypoparathyroidism Association is a self-help group that publishes a newsletter for the purpose of providing a support system for people with hypoparathyroidism and their families. Hypoparathyroidism is a condition characterized by abnormally decreased levels of calcium in the blood due to insufficient production of parathyroid hormones. Symptoms may include weakness; muscle cramps; abnormal sensations such as tingling, burning, and numbness (paresthesia) of the hands; excessive nervousness; uncontrollable cramping spasms of certain muscles; and/or other symptoms. The association seeks to inform healthcare professionals about this rare condition. The newsletter is intended for patients with hypoparathyroidism and their families. A typical issue includes general information about hypoparathyroidism, support group information, and personal essays and letters. Established in 1994, the group also seeks to inform healthcare professionals about this rare condition. The newsletter is intended for patients with hypoparathyroidism and their families. A typical issue includes general information about hypoparathyroidism, support group information, personal essays and letters, news and announcements about the use of the Internet in providing support to patients, and acknowledgments to community organizations who have helped patients.

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