The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
P.O. Box 246
Northampton, NN1 2PR United Kingdom
The International Alliance of ALS/MND Associations was founded in November 1992 to provide a forum for support and the exchange of information among the worldwide associations. More than 50 national patient support and advocacy groups from over 40 countries worldwide have joined together to form this international alliance. Amyotrophic lateral sclerosis, or motor neurone disease, is a muscle wasting condition, which affects individuals and those who care for them across the world. To help people with the disease, groups of people have come together to form associations.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.