Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


International Foundation for CDKL5 Research


Address

P.O. Box 926
Wadsworth, OH 44282

Phone

6309261189

Fax

7344267790

Email Address

info@cdkl5.com

Description

The International Foundation for CDKL5 Research (IFCR) is a voluntary organization whose mission is to lead the way in finding treatments and a cure for CDKL5 disorders by funding global research efforts and increasing awareness of CDKL5 disorders. IFCR also strives to enhance the quality of life for those affected by CDKL5 disorders by providing information, programs, and services. CDKL5, which stands for cyclin-dependent kinase-like 5, is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neurodevelopmental impairment.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.