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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


International Pemphigus & Pemphigoid Foundation



Address

1331 Garden Highway
Ste 100
Sacramento, CA 95825 USA

Phone

916-922-1298

Fax

916-922-1458

Email Address

info@pemphigus.org

Description

The International Pemphigus & Pemphigoid Foundation is a non-profit, voluntary organization formed to increase awareness of pemphigus among the general public and the medical community and to function as an information clearinghouse on autoimmune blistering diseases. Pemphigus is a group of rare autoimmune skin disorders characterized by the development of blisters in the outer layer of the skin and/or on mucous membranes that line the mouth, eyes, and rectum. Founded in 1994, the foundation seeks to provide emotional and informational support to individuals who have been diagnosed with pemphigus, their families, and friends. A quarterly newsletter disseminates information on the disease and current treatments to all interested parties. With the assistance of medical specialists and researchers from Johns Hopkins Medical Center and New York University Medical Center, the foundation works toward one of its principal goals: to raise funds for more extensive research into finding a cure for this disease.

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