The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
915 Highland Pointe Drive
Roseville, CA 95678 USA
The International Pemphigus & Pemphigoid Foundation is a non-profit, voluntary organization formed to increase awareness of pemphigus among the general public and the medical community and to function as an information clearinghouse on autoimmune blistering diseases. Pemphigus is a group of rare autoimmune skin disorders characterized by the development of blisters in the outer layer of the skin and/or on mucous membranes that line the mouth, eyes, and rectum. Founded in 1994, the foundation seeks to provide emotional and informational support to individuals who have been diagnosed with pemphigus, their families, and friends. A quarterly newsletter disseminates information on the disease and current treatments to all interested parties. With the assistance of medical specialists and researchers from Johns Hopkins Medical Center and New York University Medical Center, the foundation works toward one of its principal goals: to raise funds for more extensive research into finding a cure for this disease.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.