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International WAGR Syndrome Association



Address

1 Liberty St
New York, NY 5006 USA

Email Address

reachingout@wagr.org

Description

The International WAGR Syndrome Association is a support and information group for families affected by WAGR syndrome and/or aniridia, as well as the medical and educational professionals who work with these families. WAGR is an acronym, which stands for Wilm's tumor, aniridia, genito-urinary abnormalities, and mental retardation. A combination of two of these conditions may indicate WAGR syndrome. WAGR syndrome is caused by a deletion in the short arm of chromosome 11 (11p13-). International WAGR Syndrome Association was established in 1998, and encourages its members to share information on the management of symptoms and related topics. Its services include an Internet support group, an informative website, patient networking, and a quarterly newsletter. All services are free, and available to anyone in the world.

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