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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Intractable Childhood Epilepsy Alliance (ICE)


Address

PO Box 365
250 Lewisville-Vienna Road
Lewisville, NC 27023

Phone

3369189440

Fax

3369461197


Description

The Intractable Childhood Epilepsy Alliance (ICE) is a voluntary organization whose mission is to find a cure for ion channel and genetic epilepsy beginning with Dravet syndrome. Their immediate focus is to enhance and extend the lives of the children currently affected by these devastating syndromes and other encephalopathies. Dravet syndrome is a rare genetic epileptic encephalopathy (dysfunction of the brain) with onset during the first year in an otherwise healthy infant.

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