To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Mila’s Miracle Foundation, Inc.


P.O. Box 19675
Boulder, CO 80308 USA

Email Address

[email protected]


Our mission is to fund research and clinical trials to help Stop Batten Disease. For Mila's variant of the disease, there is no cure and no trial exists. Our goal is to raise $4 million for a new clinical trial to give children like Mila a chance at life. Families in this community have been pivotal in raising the necessary funds and awareness.  Our hope is that together with other Batten organizations, we can work with scientists to stop the progression of the disease, no matter what type. And help fund research to find a cure and Stop Batten all together.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.