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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Association for Pseudoxanthoma Elasticum (NAPE)


NAPE, Inc.
111 Oak Ridge Drive
Hawley, PA 18428 USA



Email Address

[email protected]


NAPE (The National Association for Pseudoxanthoma Elasticum) is a nonprofit 501(c)3 organization whose primary mission is to educate PXE patients and their families to live and cope successfully with PXE as we work to identify treatments and a cure. NAPE's mission is conducted through its website, quarterly newsletter (PXE Awareness), its telephone and email counseling services and through biennial meetings which move about the country to accommodate member travel needs.

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