The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
1615 Bonanza St
Walnut Creek, CA 94596 USA
The National Fragile X Foundation is a non-profit organization which unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for fragile X syndrome. Fragile X syndrome is an inherited defect of the X chromosome that can cause mental impairment, including retardation and autism. Established in 1984, the National Fragile X Foundation produces a variety of educational and support materials. These materials include a web site with over 1500 pages of information, a free handbook and brochure, a quarterly journal, pamphlets, and numerous books, videos and CDs. The NFXF also holds international conferences for families and professionals and provides grants for clinical and basic science research. In addition, the foundation maintains an 800 number to provide information, referrals and support. The NFXF is also the national organization for Fragile X - associated Tremor.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.