The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
National Eye Institute Information Office
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
The National Ophthalmic Disease Genotyping and Phenotyping Network (eyeGENE®) is a non-profit research project created by the National Eye Institute (NEI), part of the National Institutes of Health (NIH), to help build on promising research findings in the field of genetics. Over the past 30 to 40 years, more than 400 genes have been found that cause inherited eye diseases. eyeGENE® wants to aid researchers who study eye diseases and their genetic causes by allowing them to request access to DNA samples, clinical information, and patients interested in research studies and clinical trials. The eyeGENE® Network is made up of a group of vision research and clinical labs located across the United States and Canada; a Coordinating Center located at NEI in Bethesda, MD; a bank of blood/DNA samples; and a secure online database. The eyeGENE® Network gives patients a chance to get genetic testing for their eye diseases and a chance to be contacted for future studies.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.