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National Organization of Vascular Anomalies


Address

PO Box 38216
Greensboro, NC 27438-8216

Email Address

khall@novanews.org

Description

The National Organization of Vascular Anomalies (NOVA) is a non-profit, voluntary organization whose mission is to provide assistance to patients and their families affected by vascular anomalies including hemangioma, vascular malformations, and related syndromes. It also provides resource materials to medical professionals to assist them in management of patient care. Hemangioma is the most common benign tumor of infants and children. Vascular malformations are abnormally developed blood vessels. Established in 1996 and incorporated in 1997, NOVA serves patients and family members, the general public, health professionals, and other professionals such as educators, with programs and activities that include free medical conferences, support groups, patient networking, education, referrals, audio-visual aids, brochures, web site and a newsletter. The organization also assists with insurance claims and coordinates efforts for free transportation to medical appointments. NOVA, formerly Hemangioma Newsline, changed its name in August 2004.

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