Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


National Tay-Sachs and Allied Diseases Association, Inc.


Address

2001 Beacon Street
204
Brookline, MA 02146-4227 USA

Phone

6172774463

Fax

6172770134

800 Number

8009068723

Email Address

info@ntsad.org

Description

The National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) is a voluntary, non-profit health organization dedicated to the prevention and treatment of Tay-Sachs, Canavan and related genetic diseases. It provides information and support services to individuals and families affected by these diseases, as well as to the public. Its main areas of operations include public and professional education, research, genetic screening, family services, and advocacy. Through the guidance and expertise of its Scientific Advisory Committee (SAC), NTSAD promotes Tay-Sachs carrier screening, sponsors an International Tay-Sachs Laboratory Quality Control Program and publishes a list of participating labs. Through its Research Initiative, NTSAD supports scientific and medical research focusing on projects most likely to generate strong preliminary data for major funding in the area of neurodegenerative disorders affecting the central nervous system. NTSAD supports affected families through its international Parent Peer Group and Grandparent and Extended Family Group. The association conducts an annual conference for families, clinicians and researchers and a Summit of the Allied Diseases for medical professionals, patient advocacy leaders, and industry.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.