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2001 Beacon Street
Boston, MA 02135 USA
The National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) is a voluntary, non-profit health organization dedicated to the prevention and treatment of Tay-Sachs, Canavan and related genetic diseases. It provides information and support services to individuals and families affected by these diseases, as well as to the public. Its main areas of operations include public and professional education, research, genetic screening, family services, and advocacy. Through the guidance and expertise of its Scientific Advisory Committee (SAC), NTSAD promotes Tay-Sachs carrier screening, sponsors an International Tay-Sachs Laboratory Quality Control Program and publishes a list of participating labs. Through its Research Initiative, NTSAD supports scientific and medical research focusing on projects most likely to generate strong preliminary data for major funding in the area of neurodegenerative disorders affecting the central nervous system. NTSAD supports affected families through its international Parent Peer Group and Grandparent and Extended Family Group. The association conducts an annual conference for families, clinicians and researchers and a Summit of the Allied Diseases for medical professionals, patient advocacy leaders, and industry.
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