Neurofibromatosis Clinic at Texas Children’s Hospital

The Neurofibromatosis Clinic (NC) at Texas Children’s Hospital, a joint effort of the Department of Molecular and Human Genetics at Baylor College of Medicine and Texas Children’s Hospital, is a multidisciplinary clinic in which patients are seen by physicians in the subspecialities of genetics, ophthalmology, dermatology, neurology, and neurosurgery. Patients are seen by the necessary subspecialist regarding any change in status and then referred on to a particular subspecialist for additional treatment as required. Patients with a diagnosis of Neurofibromatosis I, Neurofibromatosis II, Von Hippel Lindau, and Tuberous Sclerosis are all followed in the Neurofibromatosis Clinic. Case management and ongoing counseling are provided as well as new information concerning advances in treatment and testing for these disorders.