To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

New Zealand Dystonia Patient Network Inc.


P O Box 305 375
Triton Plaza
North Shore, 757 New Zealand





Email Address

[email protected]


The New Zealand Dystonia Patient Network Inc. is a voluntary, non-profit, self-help organization dedicated to linking individuals affected by spasmodic dysphonia. Such networking opportunities enable affected individuals and family members to exchange information, resources, and mutual support. Spasmodic dysphonia is a rare disorder characterized by stuttering, momentary periods of uncontrolled vocal spasms, tightness in the throat, and/or recurrent hoarseness. The most frequent finding associated with spasmodic dysphonia is the occurrence of sudden, momentary lapses or interruptions of vocalization. Spasmodic dysphonia is a form of dystonia, a group of neuromuscular disorders characterized by involuntary muscle spasms. There are two main types of spasmodic dysphonia: "abductor" spasmodic dysphonia, in which the vocal cords draw apart (abduction), and "adductor" spasmodic dysphonia, in which the vocal cords draw together (adduction) and may become locked. The exact cause of spasmodic dysphonia is unknown. The New Zealand Spasmodic Dysphonia Patient Network was established in 1992 and currently has approximately 65 members. In addition to providing networking services to its members, the organization has a database and publishes a regular newsletter.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.