The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601 USA
The Parent Project Muscular Dystrophy (formerly the Parent Project for Muscular Dystrophy Research) is a non-profit national health organization founded in 1994 by parents of children with Duchenne and Becker muscular dystrophy. PPMD's mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education, and compassion. PPMD seeks to ensure that all families, caregivers, and healthcare professionals have access to current information about treatment and care options for children with DMD/BMD. It encourages health and human services policy makers to afford the same priority to DMD/BMD as to other disorders of similar incidence and prevalence. PPMD seeks to collaborate with the international community to assure that the voices of people with DMD/BMD are heard.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.