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Parent Project Muscular Dystrophy


Address

401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601 USA

Phone

2019449985

Fax

2019449987

800 Number

8007145437

Email Address

info@parentprojectmd.org

Description

The Parent Project Muscular Dystrophy (formerly the Parent Project for Muscular Dystrophy Research) is a non-profit national health organization founded in 1994 by parents of children with Duchenne and Becker muscular dystrophy. PPMD's mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education, and compassion. PPMD seeks to ensure that all families, caregivers, and healthcare professionals have access to current information about treatment and care options for children with DMD/BMD. It encourages health and human services policy makers to afford the same priority to DMD/BMD as to other disorders of similar incidence and prevalence. PPMD seeks to collaborate with the international community to assure that the voices of people with DMD/BMD are heard.

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