To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

PCD/KS Foundation


10137 Portland Avenue South
Minneapolis, MN 55420 USA





Email Address

[email protected]


The PCD Foundation (Primary Ciliary Dyskinesia) is a voluntary, not-for-profit 501(c)(3) patient advocacy foundation that promotes research, increases public awareness, and provides information and support services for individuals and families affected by inherited ciliary disorders. Another name for primary ciliary dyskinesia is Kartagener syndrome. This disease results in a chronic cough, scarring of the airways, and recurrent lung infection as a result of malfunctioning cilia, the tiny, hair-like structures that normally provide protection from unwanted inhaled particles. The PCD Foundation offers information to patients, families, health professionals, and the public. Its services include patient networking, advocacy, research and general education.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.