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Pierre Robin Network


3604 Biscayne
Quincy, IL 62305 USA





Email Address


The Pierre Robin Network was formed in May of 1999 by the mother of a son with Pierre Robin syndrome, which is characterized by a small lower jaw, displaced tongue, and cleft soft palate. The organization is made up of parents, relatives, caregivers, adults with PRS and professionals who have an interest in PRS. The purpose is to network families and individuals with PRS and provide information to anyone who has an interest. Parents and caregivers do not need to feel alone: having a child with PRS can be overwhelming. There are many issues associated with PRS, which are unique to PRS.

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