The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
12 Ashwood Court
Lawrenceville, NJ 08648
The Recurrent Respiratory Papillomatosis Foundation (RRPF) is a national, non-profit, voluntary organization created to provide support and information to people with recurrent respiratory papillomatosis and their families. Established in 1992, the foundation seeks to serve as an information resource for affected individuals and their physicians, to promote public awareness, and to aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis. In addition, the foundation endeavors to educate the medical community about recurrent papillomatosis, to facilitate early diagnosis of the disease, and to implement risk reduction measures. The nucleus of the network is the RRP Newsletter. It includes support network information, statistics, individual case histories, treatment developments, and additional information that further understanding and awareness of recurrent respiratory papillomatosis.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.