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Sarcoid Networking Association


Address

12619 S. Wilderness Way
Molalla, OR 97038 USA

Phone

541-905-2092

Description

The Sarcoid Networking Association (SNA) is a 501(c)(3) national, non-profit, self-help organization dedicated to providing information and support to individuals and family members affected by sarcoidosis. Sarcoidosis, a rare multisystem disorder of unknown cause, is characterized by the abnormal formation of inflammatory masses or nodules (granulomas) consisting of certain granular white blood cells (modified macrophages or epithelioid cells) in certain organs of the body. The granulomas that are formed are thought to affect the normal structure of and, potentially, the normal functions of the affected organ(s), causing symptoms associated with the particular body system(s) in question. In individuals with sarcoidosis, such granuloma formation most commonly affects the lungs. However, in many cases, other organs may be affected. The range and severity of symptoms associated with sarcoidosis vary greatly, depending upon the specific organ(s) involved and the degree of such involvement. Established in 1992, the Sarcoid Networking Association promotes research, works to increase professional and public awareness of sarcoidosis, and provides networking services that enable affected individuals and family members to exchange information, support, and resources. The association also engages in-patient advocacy, has a directory, has a patient registry, makes appropriate referrals, and offers a variety of materials including pamphlets, brochures, audiovisual aids, and a regular newsletter entitled "Sarcoidosis Networking."

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