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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Sickle Cell Disease Association of America, Inc.


Address

231 East Baltimore Street
Suite 800
Baltimore, MD 21202 USA

Phone

4105281555

Fax

4105281495

800 Number

8004218453

Description

The Sickle Cell Disease Association of America (SCDAA) is a voluntary service organization dedicated to educating the public and providing support to people affected by sickle cell disease. The association was founded in 1971 as the umbrella organization for community-based groups providing support and services to persons affected by sickle cell conditions. The association seeks to educate the public about sickle cell disease and the sickle cell trait and develop educational materials on these conditions for extensive circulation. It also educates legislators on issues regarding sickle cell disease and other genetic disorders and fosters ongoing medical research to improve the well being of those affected by sickle cell disease. In addition, the association supports research, advocates on behalf of all individuals affected by sickle cell diseases, and provides appropriate referrals to medical professionals. The association is the only national community-based voluntary health agency working full-time to resolve issues surrounding sickle cell conditions. The Sickle Cell Disease Association provides an extensive supply of resources. These include guidebooks, brochures, pamphlets, audio and visual tapes, fact sheets, and a periodic newsletter entitled "Sickle Cell News."

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