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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Sjögren’s Syndrome Association


Address

3155 Rue Hochelaga, Suite 001
Quebec, H1W 1G4 Canada

Phone

5149343666

Fax

5149341241

800 Number

8779343666

Description

The Sjögren’s Syndrome Association, Inc. is a voluntary, non-profit health organization in Montreal, Canada, dedicated to providing support and education to individuals affected by Sjögren’s syndrome, an immunologic disorder characterized by deficient moisture production of the tear duct (lacrimal), salivary, and/or other glands. Associated symptoms typically include abnormal dryness of the eyes (keratoconjunctivitis sicca), the mouth (xerostomia), and other affected glands. The disorder most commonly affects females over the age of 40 and often occurs in association with certain autoimmune, connective tissue disorders (e.g., rheumatoid arthritis, systemic lupus erythematosus, or scleroderma). The Sjögren’s Syndrome Association was formed in 1994 to provide affected individuals and family members with practical information and coping strategies for living with Sjögren’s syndrome. The organization currently has approximately 160 members and a chapter in Ontario, Canada. It gathers and disseminates medical information relating to Sjögren’s syndrome, promotes research, and represents the interests all individuals with the disease. In addition, the Sjögren’s Syndrome Association conducts regular group meetings and physician conferences, promotes public awareness of the disorder, and offers a variety of educational materials including brochures and a regular newsletter that contains medical news, information on current research, and helpful tips for daily living.

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