Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome. Our goal is to raise funds for research, promote public awareness, and align scientists, patients, parents, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to treating people with Skraban-Deardorff Syndrome and related diseases.
Facebook: https://www.facebook.com/people/Skraban-Deardorff-Syndrome-Foundation/100084360871680/