Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Sofia Sees Hope



Address

PO Box 705
Ledyard, CT 06339 United States

Email Address

info@sofiaseeshope.org

Description

Sofia Sees Hope is transforming the lives of those affected by blindness caused by Leber Congenital Amaurosis and other rare inherited retinal diseases by generating awareness and raising funds to advance
Research for treatments and cures:
Patient support for diagnosis and treatment
Patient and medical community education and outreach
Public awareness of inherited retinal disease and treatments

Facebook
Twitter Handle: @sofiaseeshope
Hashtag: #blindfoldbreakfast

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.