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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sofia Sees Hope


PO Box 705
Ledyard, CT 06339 United States

Email Address

[email protected]


Sofia Sees Hope is transforming the lives of those affected by blindness caused by Leber Congenital Amaurosis and other rare inherited retinal diseases by generating awareness and raising funds to advance Research for treatments and cures: Patient support for diagnosis and treatment Patient and medical community education and outreach Public awareness of inherited retinal disease and treatments Facebook Twitter Handle: @sofiaseeshope Hashtag: #blindfoldbreakfast

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