To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sotos Syndrome Support Association of Canada


1944 Dumfries
Quebec, H3P 2R9 Canada



Email Address

[email protected]


The Sotos Syndrome Support Association of Canada is to provide support to persons with Sotos syndrome and their families. Since a diagnosis of Sotos syndrome is typically made in the first few years of life, it can be trying for families as they try to deal with the diagnosis, determine what they can expect for their child, and learn what they can do to best support their child's development. SSSAC endeavors to support families by providing them with information by way of handbooks, pamphlets, Internet, public lectures, and discussions, and with emotional support by facilitating discussions with other parents who have been through similar experiences. SSSAC also promotes public awareness of Sotos syndrome in each province in Canada, among educators, families and members of the medical community.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.