Steffens Scleroderma and Degos Disease Foundation

The Degos Disease Foundation is a program within the Ann Steffens Scleroderma Research Foundation, Inc. to inform and support patients, caregivers and the medical community about the diagnosis of Degos disease, also known as malignant atrophic papulosis or Kohlmeier-Degos disease. This is a rare systemic disorder that causes small- and medium-sized arteries to become blocked. It can manifest or progress in two forms. In the first, characteristic skin lesions appear. In the second, lesions may appear in the small intestine, central nervous system, or other organs.