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STXBP-1 Fund



Address

2001 Hamilton Street Suite 917
Philadelphia, PA 19130 USA

Phone

215-977-9955

Email Address

stxbp1@gmail.com

Description

STXBP-1 Fund started as small group of concerned parents that began reaching out in the hopes of finding answers. Today, the organization strives to create awareness for those with STXBP-1 mutations, fund research, provide families with information, advocate to improve early detection and policies for orphaned diseases, and overall improve the lives of STX families.

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