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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Syndromes Without A Name USA


1745 Lorna Lane
Otsego, MI 49078 USA



800 Number


Email Address

[email protected]


The Syndromes Without A Name USA (SWAN USA) is a non-profit, voluntary organization whose mission is to provide support, information and connections to families of children with undiagnosed medical conditions. By promoting programs that increase awareness, respect, understanding and improvement of the quality of life of these children, SWAN USA hopes to empower families to create a safe environment and protect the welfare of those living without a diagnosis.

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