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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


The Mastocytosis Society, Inc.



Address

PO Box 129
Hastings, NE 68902-0129 USA


Description

The Mastocytosis Society (TMS) is a non-profit organization dedicated to supporting patients affected by Mastocytosis/Mast Cell Activation Disorders as well as their families, caregivers, and physicians through research, education, and advocacy. Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells, a type of cell normally found in connective tissue. The skin, liver, spleen, bone and bone marrow, gastrointestinal tract, heart, lymph nodes, and the central and peripheral nervous system may be involved in mastocytosis and related mast cell disorders, such as idiopathic anaphylaxis, and other disorders of mast cell activation. TMS publishes a quarterly newsletter, has regional support groups for patients and caregivers, and maintains a close working relationship with mast cell disease physician researchers world wide. They have a Medical Advisory Board of top experts in mast cell disorders, attend medical conferences to educate physicians and other health care professionals, and work with the AAAAI Committee on Mast Cell Disorders. TMS hosts an annual conference attended by over 100 members and physicians, which is launched by a Walk-a-thon to raise money for mast cell disease education and research. They also give out research grants. TMS has over 375 members, and over 2000 contacts in their database. Visit their website at www.tmsforacure.org.

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