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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


The Mastocytosis Society, Inc.



Address

PO Box 416
Sterling, MA 01564 USA

Email Address

info@tmsforacure.org

Description

The Mastocytosis Society (TMS) is a non-profit organization dedicated to supporting patients affected by Mastocytosis/Mast Cell Activation Diseases as well as their families, caregivers, and physicians through research, education, and advocacy. Mastocytosis is a rare disease characterized by abnormal accumulations of mast cells, a type of cell normally found in connective tissue. The skin, liver, spleen, bone and bone marrow, gastrointestinal tract, heart, lymph nodes, and the central and peripheral nervous system may be involved in Mastocytosis and related mast cell diseases. TMS has a patient and physician informational website, has regional support groups for patients and caregivers, and maintains a close working relationship with mast cell disease physician researchers world wide. They have a Medical Advisory Board of top experts in mast cell diseases, attend medical conferences to educate physicians and other health care professionals, and work with the AAAAI Committee on Mast Cell Diseases. TMS hosts an biennial conference attended by over 100 members and physicians, which is launched by a Walk-a-thon to raise money for mast cell disease education and research. They also give out research grants. TMS has over  1,000 members, and over 6,000 members of their patient support facebook page. Visit their website at www.tmsforacure.org.



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