About US Hereditary Angioedema Association, Inc.
The US Hereditary Angioedema Association, Inc., is a non-profit organization dedicated to serving persons with angioedema resulting from CI inhibitor deficiency by increasing awareness of the disease and providing patients and physicians with authoritative and readily accessible information about it. The association also serves as a support network for patients, as well as an advocate for research seeking effective therapies and an ultimate cure. Hereditary angioedema is a rare inherited vascular disorder characterized by an excessive accumulation of body fluids that may block the normal flow of blood or lymphatic fluid, resulting in swelling at various locations in the body. With 150 members, the association provides services that include support groups, patient networking, a newsletter, and patient/professional education.