To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Siegel Rare Neuroimmune Association


1787 Sutter Parkway
Powell, OH 43065 USA

800 Number


Email Address

[email protected]


The Siegel Rare Neuroimmune Association (formerly the Transverse Myelitis association — read more about the change here) is a not-for-profit dedicated to the support of children, adolescents, and adults with rare neuroimmune disorders. Our goal is to improve the quality of life of individuals with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody-associated disease (MOG-Ab disease), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), transverse myelitis (TM), and all other rare neuroimmune disorders. We connect individuals affected by rare neuroimmune disorders with each other, and with a network of medical professionals, researchers, and clinician-scientists. We care for all those affected by offering support, providing education and quality of life programs, and serving as an information resource on rare neuroimmune disorders. We advance the work of finding a cure by funding innovative research, training clinician-scientists, developing novel therapies, and investing in academic centers of excellence. Facebook: Twitter:

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.