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New York Rare Action Network

|RareNY.org

February 2021

New York Rare Disease Day Virtual Event

February 25 @ 6:30 pm - 8:00 pm

New York Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New York legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the New York Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

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