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NORD

February 2020

NORD Webinar – Starting a Not-for-Profit Organization: You Can Do It, We Can Help!

February 20 @ 2:00 pm - 3:00 pm

Starting a Not-for-Profit Organization: You Can Do It, We Can Help! Are there no patient-led nonprofit organizations for your rare disease? Are you involved in a Facebook group for your rare disease and think the community is ready to “take the leap” to form a nonprofit organization? Come learn *why* and *how* to start a nonprofit corporation from a legal expert and a NORD member patient advocacy organization. Topics will include the steps to form a nonprofit, acquiring 501(c)3 tax-exempt status, and how a nonprofit…

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Rare Disease Day 2020

February 29

Each year on the last day of February, the rare disease community comes together to raise awareness for the 25-30 million Americans impacted by rare diseases. Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. It’s never too early to get involved! The National Organization for Rare Disorders (NORD) is…

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Rare Disease Day: Mission 2020

February 29 @ 11:00 am - 2:00 pm
International Spy Museum, International Spy Museum 700 L'Enfant Plaza, SW
Washington, DC 20024 United States
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Rare Disease Day: Mission 2020 will be a day of family fun and intrigue at the International Spy Museum, one of DC's newest family-friendly, accessible-to-all museums. NORD will be hosting activities and lunch for folks living with rare diseases, their families and other rare community supporters! Everyone is welcome. What will the mission at the International Spy Museum entail? Just like many of the spies featured in the museum, we know our rare community must get creative and be persistent when…

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May 2020

Living Rare, Living Stronger: NORD Patient and Family Forum 2020

May 14 - May 16

NORD CEO Peter L. Saltonstall has some big news to share on the city we are taking the Living Rare, Living Stronger: NORD Patient and Family Forum to in May 2020, plus the amazing venue for the Rare Impact Awards! Get ready to rock!   Check our site for last year's highlights and upcoming details.

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