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NORD Louisiana Rare Action Network

|RareLA.org

February 2021

Louisiana Rare Disease Day Virtual Event

February 27 @ 3:00 pm - 4:30 pm

Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Louisiana legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Louisiana by providing stakeholders an opportunity to make formal recommendations to state leaders about…

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