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NORD Maine Rare Action Network


February 2021

Maine Rare Disease Day Virtual Event

February 19 @ 12:00 pm - 1:30 pm

Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Maine legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Maine by providing stakeholders an opportunity to make formal recommendations to state leaders about…

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