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Jan. 26, 2021


Danyelle Sun, Wisconsin Rare Action Network Volunteer Ambassador

Posted by Sean Roberts

Newborn Screening

Both of our children were diagnosed with spinal muscular atrophy (SMA) in 2013. While they are both doing well, we know that early detection and treatment of SMA results in the ability to prevent loss of strength instead of having to try to rebuild what has already been lost. It’s important to me that other families not have to wait months, or even years, for a diagnosis, all while watching their child lose strength. Newborn screening can allow families time to process and prepare for next steps after a life-changing diagnosis.