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May. 2, 2022

TOPIC:

Elizabeth Shannon: Wolfeboro, New Hampshire

Posted by Sean Roberts

I have been treated for a rare neuromuscular disease called myasthenia gravis for 12 years. Telehealth is very important to the rare disease community. As a patient, I used Telehealth while I had an active COVID-19 infection. My neurologist coordinated emergency care so I could receive an infusion. This infusion lowered my risk of myasthenic crisis. Telehealth is important to me because I do not drive, and telehealth visits are an invaluable tool for follow up appointments.