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Jan. 26, 2021


Maria Bellefeuille, Illinois Rare Action Network Volunteer Ambassador

Posted by Sean Roberts

Out-of-Pocket Costs

As a cystic fibrosis patient, I am currently prescribed over 20 medications. Each needs to be filled through one mail order pharmacy, otherwise my insurance plan will not help cover the cost. Each medication is organized by tier pricing ranging from $15 – $30. My current out-of-pocket cost for a month of medications is roughly $400. This is a financial strain on my family at times because I am on disability income.