For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition comments on Proposed Rule HHS– OS–2020–0012, “Securing Updated and Necessary Statutory Evaluations Timely”
Published: Dec 4, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition letter urging Congress to pass comprehensive surprise medical billing protections for patients and consumers in an end of year legislative package
Published: Dec 4, 2020
Tagged in: Access to Affordable, Adequate Coverage, Surprise Medical Billing
Coalition letter to Michigan House Ways and Means Committee in support of HB 5944, a bill regarding copay assistance.
Published: Nov 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition letter to Massachusetts Budget Conferees requesting extension of the state law allowing the use of manufacturer copay assistance.
Published: Nov 23, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition letter to the Massachusetts House of Representatives regarding step therapy protocols.
Published: Nov 23, 2020
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
