For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD submits testimony to the Massachusetts Joint Committee on Financial Services in support of House Bill 1153 , which would require health insurance coverage for certain medically necessary services related to functional repair or restoration of craniofacial disorders.
Published: Jul 27, 2021
Tagged in: Access to Affordable, Adequate Coverage
NORD joins several patient organizations in a statement applauding the Biden administration rule implementing the No Surprises Act
Published: Jul 14, 2021
Tagged in: Access to Affordable, Adequate Coverage, Surprise Medical Billing
NORD and 19 patient organizations submit comments on the progress of the TennCare III demonstration
Published: Jul 9, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD submits testimony to the Massachusetts Joint Committee on Health Care Financing in support of Senate Bill 756 and House Bill 1311 , step therapy reform legislation
Published: Jul 9, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD and 22 organizations submitted an amicus curiae brief in the Missouri Supreme Court on the vital role that the implementation of Medicaid expansion would have in the lives of hundreds of thousands of Missourians
Published: Jun 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
