For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 23 patient organizations ask Congressional leadership to address the Medicaid coverage gap and make enhanced APTCs permanent through budget reconciliation
Published: May 20, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 13 patient organizations submit a letter in support of Alaska’s 1332 reinsurance waiver demonstration
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and dozens of patient advocacy organizations urge Congress to make the enhanced APTCs permanent
Published: May 18, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD and eight coalition partners send comments to the federal government in support of Maine’s proposed 1332 reinsurance waiver
Published: Apr 26, 2022
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
