For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins other patient groups to the Minnesota House and Senate Conference Committee in support of adopting Article 5, Section 7 of the fourth engrossment of HF 2128 to create a copay benefit option for individual and small-group coverage
Published: May 4, 2021
Tagged in: Access to Affordable, Adequate Coverage, Out of Pocket Prescription Drug Costs
NORD letter to the Oregon Senate Committee on Health Care regarding utilization management
Published: Apr 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD submits written testimony to Rhode Island’s Senate Health and Human Services Committee in support of Senate Bill 302, step therapy reform legislation
Published: Apr 29, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD Joins Leukemia & Lymphoma Society and Over 110 Other Organizations to Support Consumer Assistance Program Funding in Fiscal Year 2022 Labor, HHS Appropriations
Published: Apr 26, 2021
Tagged in: Appropriations, Access to Affordable, Adequate Coverage
NORD joins coalition letter with 19 additional patient organizations to HHS opposing Oklahoma’s request to eliminate retroactive eligibility for Medicaid patients
Published: Apr 22, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
