NORD and 27 organizations endorse model legislation on biomarker access to the National Council of Insurance Legislators
Published: Jun 7, 2022
Tagged in: Genetic Testing, Access to Diagnostics, Access to Innovative Medicines and Therapies
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 27 organizations endorse model legislation on biomarker access to the National Council of Insurance Legislators
Published: Jun 7, 2022
Tagged in: Genetic Testing, Access to Diagnostics, Access to Innovative Medicines and Therapies
NORD and five other patient organizations issue one-pager on the importance of biomarker testing and precision medicine
Published: Apr 27, 2022
Tagged in: Genetic Testing, Access to Diagnostics
NORD and 29 patient organizations submit a letter of support for expanding access to biomarker testing in Ohio
Published: Mar 14, 2022
Tagged in: Genetic Testing, Access to Diagnostics
NORD joins 78 other organizations on a letter to include the “Newborn Screening Saves Lives Reauthorization Act of 2021” in the omnibus spending bill for FY 2022
Published: Feb 4, 2022
Tagged in: Newborn Screening
NORD and coalition partners send letter to Congressional leaders asking that they increase funding for CDC and HRSA newborn screening programs
Published: Jan 14, 2022
Tagged in: Newborn Screening, Access to Diagnostics