For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD Submits Comments to Reps. DeGette and Upton on 21st Century Cures 2.0 Discussion Draft
Published: Jul 26, 2021
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Access to Diagnostics, Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science, COVID-19
NORD and 21 Other Organizations Send Letter to Senate Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Published: Mar 9, 2021
Tagged in: Appropriations, Newborn Screening
NORD and 21 Other Organizations Send Letter to House Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Published: Mar 9, 2021
Tagged in: Appropriations, Newborn Screening
Coalition Letter to Senate Appropriations Committee on Support for Newborn Screening Program
Published: Sep 9, 2020
Tagged in: Appropriations, Newborn Screening
Coalition Letter to House Appropriations Committee on Support for Newborn Screening Program
Published: Sep 9, 2020
Tagged in: Appropriations, Newborn Screening
