NORD and 26 patient groups praise House passage of legislation that extends quality, affordable health coverage to millions Read full statement >
NORD joins letter to Congressional leadership along with 54 patient organizations asking that provisions to improve medication access in emergencies is included in upcoming pandemic preparedness legislation.
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Published: Jul 27, 2021
Tagged in: COVID-19
NORD Submits Comments to Reps. DeGette and Upton on 21st Century Cures 2.0 Discussion Draft Read full statement >
CDC Response to NORD, ALS Association, Muscular Dystrophy Association, and Cystic Fibrosis Foundation Letter to CDC Director, Dr. Walensky, Requesting Additional Guidance to Ensure Rare Disease Patients Have Access to the COVID-19 Vaccine Read full statement >
NORD joins coalition letter urging the federal government to rescind rules that weaken the beneficiary protections in the Families First Coronavirus Response Act (FFCRA) Read full statement >