For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition statement on the approval of Georgia’s 1115 waiver and pending approval of the state’s 1332 waiver, which reduce access to comprehensive health insurance for patients.
NORD comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration, and urging the state to reinstate retroactive eligibility for beneficiaries.