For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD sends letter urging President Biden and Vice President Harris to include medical nutrition as a topic of discussion for the September 2022 Conference on Hunger, Nutrition, and Health.
Published: Jul 11, 2022
Tagged in: Copay Assistance, Medical Nutrition
NORD joins the Patients and Providers for Medical Nutrition Equity in endorsing the Medical Nutrition Equity Act (S.2013/H.R. 3783)
Published: Apr 20, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medical Nutrition
NORD joins 7 other patient organizations on a letter to support an amendment to Hawaii packaging bill, HB2399, that could impact the price and access to several food and beverage items, including infant formula, medical foods, and foods for special dietary use.
Published: Apr 15, 2022
Tagged in: Medical Nutrition
NORD comments to CMS on the proposed removal of the National Coverage Decision 180.2 made on July 11, 1984 for patients requiring enteral and parenteral medical nutrition
Published: Sep 10, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medical Nutrition
NORD joins the Patients and Providers for Medical Nutrition Equity in endorsing the Medical Nutrition Equity Act (S.2013/H.R. 3783)
Published: Jun 11, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medical Nutrition
