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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD and the Medical Nutrition Equity Coalition sends letter to Senate leadership to include the MNEA in the end-of-year legislative package

Published: Nov 14, 2022
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NORD and the Medical Nutrition Equity Coalition sends letter to House leadership to include the MNEA in the end-of-year legislative package

Published: Nov 14, 2022
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NORD sends letter urging President Biden and Vice President Harris to include medical nutrition as a topic of discussion for the September 2022 Conference on Hunger, Nutrition, and Health.

Published: Jul 11, 2022
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NORD joins 7 other patient organizations on a letter to support an amendment to Hawaii packaging bill, HB2399, that could impact the price and access to several food and beverage items, including infant formula, medical foods, and foods for special dietary use.

Published: Apr 15, 2022
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