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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD joins a statement commending the House Ways and Means Committee for including details for a national paid family and medical leave program as part of the budget reconciliation package

Published: Sep 9, 2021
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NORD joins a letter to Congressional leadership to support a national paid family and medical leave program

Published: Aug 23, 2021
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NORD joins a paid medical leave principle document with several other patient advocacy organizations

Published: Jul 30, 2021
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Alone we are rare. Together we are strong.®