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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD joins 26 patient organizations in letter to congressional leadership to reinstate guaranteed emergency paid sick and family caregiving leave.

Published: Apr 4, 2022
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NORD joins 40 patient organizations in submitting a letter to the administration to request the reinstatement of guaranteed emergency paid sick and family caregiving leave for all U.S. workers

Published: Feb 3, 2022
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Statement from NORD and members of the Patients and Caregivers Paid Leave Coalition applauding House lawmakers for taking action to amend the Build Back Better legislation to include the creation of a paid medical and family leave program

Published: Nov 5, 2021
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NORD joins coalition statement expressing disappointment over the omission of a paid leave program from the latest version of the Build Back Better Act

Published: Oct 28, 2021
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NORD and 20 coalition partners send a letter to Senator Manchin urging him to support a national paid family and medical leave program in the budget reconciliation package

Published: Oct 12, 2021
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