For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD submits comments to FDA on Request for Information on Rare Disease Clinical Trial Networks
Published: Jul 31, 2020
Tagged in: Advancing Rare Disease Research and Regulatory Science, Rare Disease Clinical Trials, Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP)
NORD comments to FDA regarding clinical trial eligibility
Published: Aug 6, 2019
Tagged in: Access to Innovative Medicines and Therapies, Rare Disease Clinical Trials
NORD comments to the Food and Drug Administration (FDA) regarding targeted therapies
Published: Feb 16, 2018
Tagged in: Access to Innovative Medicines and Therapies, Rare Disease Clinical Trials
NORD letter in support of the Enhancing Clinical Trial Design Act
Published: May 9, 2017
Tagged in: Access to Innovative Medicines and Therapies, Rare Disease Clinical Trials
