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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms

Published: Jul 26, 2021
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NORD testimony to the Delaware Senate Health and Social Services Committee in support of House Bill 160 that would expand telehealth access with a few modifications

Published: May 11, 2021
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NORD letter to the Oregon Senate Committee on Health Care in support of HB2508, a bill to improve telehealth access

Published: Apr 28, 2021
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NORD statement to the House Ways and Means Committee for the Health Subcommittee Hearing: “Charting the Path Forward for Telehealth”

Published: Apr 28, 2021
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NORD letter of support to the Delaware House and Human Development Committee in support of House Bill 160 to support increased access to telehealth after the COVID-19 pandemic

Published: Apr 22, 2021
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