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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD and 23 patient organizations send letter to members of the Ohio Senate urging the rapid passage of HB 122

Published: Nov 3, 2021
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NORD, along with the ALS Association, the Alliance for Connected Care and 235 other patient organizations call on governors to protect access to telehealth

Published: Oct 28, 2021
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NORD testimony to the Ohio Senate Health Committee in support of House Bill 122 that would would make permanent provisions related to telehealth

Published: Sep 29, 2021
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NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms

Published: Jul 26, 2021
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NORD testimony to the Delaware Senate Health and Social Services Committee in support of House Bill 160 that would expand telehealth access with a few modifications

Published: May 11, 2021
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