Scroll
To Top

Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

Filter Statements

  • Filter by Year

  • Filter by Type

  • Filter by Category

Policy Statements

NORD submits written testimony to Alaska House Finance Committee in support of HB 265, an act related to telehealth services in the state.

Published: Apr 14, 2022
Tagged in:

Read full statement >

NORD submits written testimony to CT Public Health Committee in support of Senate Bill 375 to extend the expansion of telehealth services until June 30, 2024

Published: Mar 30, 2022
Tagged in:

Read full statement >

NORD joins hundreds of organizations in establishing a pathway for comprehensive telehealth reform

Published: Jan 31, 2022
Tagged in:

Read full statement >

NORD and 23 patient organizations send letter to members of the Ohio Senate urging the rapid passage of HB 122

Published: Nov 3, 2021
Tagged in:

Read full statement >

NORD, along with the ALS Association, the Alliance for Connected Care and 235 other patient organizations call on governors to protect access to telehealth

Published: Oct 28, 2021
Tagged in:

Read full statement >