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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

NORD submits written testimony to Alaska House Finance Committee in support of HB 265, an act related to telehealth services in the state.

Published: Apr 14, 2022
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NORD letter of support to Alaska Senate Health and Social Services committee in support of Senate Bill 78 to increase telehealth access

Published: Apr 15, 2021
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