NORD and 14 other patient organizations send a letter to Governor Polis urging him to sign SB 186 into law, legislation to establish a CO Rare Disease Advisory Council
Published: May 12, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 14 other patient organizations send a letter to Governor Polis urging him to sign SB 186 into law, legislation to establish a CO Rare Disease Advisory Council
Published: May 12, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits written testimony to the CO Senate Committee on Health & Human Services Committee in support of Senate Bill 186 to establish a Rare Disease Advisory Council
Published: Apr 25, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 16 other patient organizations submit a letter to Governor Polis to support Senator Ginal’s draft legislation to create a Rare Disease Advisory Council
Published: Mar 3, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 16 other patient organizations submit a letter to Colorado Senate leadership to support Senator Ginal’s draft legislation to create a Rare Disease Advisory Council
Published: Feb 24, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 13 patient organizations submit comments to the federal government in support of Colorado’s 1332 waiver application
Published: Feb 2, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Section 1332 Waivers
