NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD submits a letter of support to the CT Speaker of the House in support of House Bill 5260 to establish a Rare Disease Advisory Council
Published: Apr 28, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits written testimony to CT Public Health Committee in support of Senate Bill 375 to extend the expansion of telehealth services until June 30, 2024
Published: Mar 30, 2022
Tagged in: Telehealth
NORD submits written testimony to the CT Public Health Committee in support of House Bill 5260 to establish a Rare Disease Advisory Council
Published: Mar 10, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
Coalition Press Release Urging Connecticut Department of Health to Issue Guidance Prevent Discriminatory Rationing of COVID-19 Care
Published: Jan 26, 2021
Tagged in: Anti-discrimination, COVID-19
