For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins 14 patient organizations in a letter to the D.C. City Council’s Committee on Health opposing the exemption of professional employer organizations from vital patient protections
Published: Mar 15, 2022
Tagged in: Access to Affordable, Adequate Coverage
NORD and coalition partners send letter to Congressional leaders asking that they increase funding for CDC and HRSA newborn screening programs
Published: Jan 14, 2022
Tagged in: Newborn Screening, Access to Diagnostics
Coalition letter to the Council of the District of Columbia in support of a bill that would place restrictions on short-term, limited-duration plans and association health plans
Published: Nov 9, 2018
Tagged in: Access to Affordable, Adequate Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
