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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

NORD and 98 organizations send letter to Congressional leadership to resume negotiations to develop a comprehensive FDA user fee package

Published: Aug 1, 2022
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NORD and 70 other organizations urge Senate HELP and House Energy and Commerce leadership to address clinical trial diversity in the PDUFA reauthorization

Published: Jul 11, 2022
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